This is largely because many people with a Chiari malformation do not suffer any symptoms, and the condition therefore goes undiagnosed. But that should not mean it should remain unknown.

Groeller, 17, and her mother, Allyson Moulton, 37, from Atlanta, spoke to Newsweek about the life-altering diagnosis of Chiari malformation. "She had a continuous migraine for 48 days," Moulton said.