As they grieve their son, the boy's parents said they were stunned to learn South Carolina, like most other U.S. states, has no law requiring public reporting of deaths or infections from the amoeba. The lake wasn't closed and no water testing was performed. If they hadn’t spoken up, they wonder if anyone would have even known what happened.

A child in South Carolina has died after being infected with Naegleria fowleri, commonly referred to as brain-eating amoeba. State health officials confirm exposure likely came from Lake Murray the week of July 7.