In the first of a series, columnist Joe MacDonald reflects on the birth of his oldest son, who hadn't yet been diagnosed with hemophilia.

The results of gene therapy for hemophilia B contrast with those of factor replacement therapies, where lifelong infusions ...

A caregiver needs respite from the duties of watching over a chronically ill patient, columnist Cazandra Campos-MacDonald writes.

Columnist Alliah Czarielle says her husband, Jared, adapts to whatever hemophilia and epilepsy throw his way. Being present is the core.

That’s how Heidi Bentz and Lucrecia E. Choto, two women who struggled for years to receive a proper diagnosis of von Willebrand disease (VWD), described the results of a 2004 survey by the U.S.

CAR T-cell therapy, a type of treatment that weaponizes the body’s immune system and was originally developed to treat cancer, for the first time successfully treated a patient with acquired ...

My husband, Jared, lives with hemophilia B and a seizure disorder. He also lifts weights, performs bodyweight workouts, and swims. Now and then, someone will see him doing laps in the pool and ask, ...

G Shellye Horowitz, MA, PPS, has strong ties to the bleeding disorders community with six traceable generations of hemophilia A in her family. She also has hemophilia A. Her advocacy work includes an ...