News

When I decided it was time to start a family, I quickly realized that — just like living with CF — having a baby would mean preparing for the unexpected, especially when it came to finances.
We’re highlighting five creators who are helping raise awareness for cystic fibrosis. They’re voicing the many ways people experience the disease by sharing a part of their life through written and ...
When my friend Michelle and I started a volunteer group, we looked forward to giving back to the community with our free time. What we didn’t anticipate was how deeply we’d become involved in a cause ...
Hemoptysis and pneumothorax are complications reported in people with cystic fibrosis. This document reflects the Cystic Fibrosis Foundation's Pulmonary Therapies Committee recommendations for the ...
Dear Chair Stefano, Chair Boscola, and Members of the Committee on Consumer Protection and Professional Licensure, On behalf of more than 1,600 people living with cystic fibrosis (CF) in Pennsylvania, ...
Lea was diagnosed with cystic fibrosis at 3 years. She earned her bachelor's degree in Biology from Mount Saint Mary's University, and a bachelor's degree in Nursing from Johns Hopkins Univeristy. Lea ...
Food insecurity is a widespread problem that also touches the cystic fibrosis community. I should know — I have experienced it myself and had to accept government assistance to buy food.
The additional funding will support a Phase 2 clinical trial for an inhaled antisense oligonucleotide drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T.
BETHESDA, Md. -- Today, the Cystic Fibrosis Foundation announced that Steven Rowe, MD, will be its next chief scientific officer. In this role, Dr. Rowe will oversee the Foundation’s basic science, ...
Even though Trikafta saved my life, I am still dealing with the emotional trauma of being so close to death and missing the person I was before I got so sick.